Professional Record Standards Body - May/June 2019

Results: Survey shows high demands for sharing of health and care information
More than 90% of people believe that joining up digital health and care information across the UK will improve the quality, safety and efficiency of care, PRSB’s survey on a core information standard to support local health and care records shows.
The survey formed part of our work for NHS England to determine what information should be shared in a core record and accessible to all involved in an individual’s health and care. 
Last month’s survey attracted an impressive 1,010 respondents, including professionals from a wide range of health and care backgrounds, people who use services and carers. We asked what concerns people might have about sharing data, what benefits there might be and to rate the importance of the sections of the core information standard.
In addition to making care better and safer, 80% of respondents said that making care information easily available would help to support individuals to take greater control of their own health and care. This would support the government’s ambitions to empower patients and carers and improve integration of care in the community.
Also, 80% of people said that the ‘about me’ section should be prioritised to improve personalisation of care. This was reflected in our recent Twitter chat, where respondents expressed the importance of having information that was important to them available to everyone involved in their care.
A full report on the findings, as well as a detailed list of recommendations will be published next month.

This month

Nuffield trust report features PRSB

The Nuffield Trust has referenced our contributions in a new report, which identifies opportunities for local health and care organisations to make better use of health data.
The briefing, which can be found here, highlights the importance of implementing our standards for patient records.

Blog: Changing the culture
“One of the greatest challenges with digital development isn’t changing the technology, it’s changing the culture within the NHS and social care.” Tech UK advisory board member Dr Michael Thick, says we won't see real change unless organisations move forward with systems. 
Click here to read the full blog.
NHS England highlights personalised care
We’re delighted NHS England has highlighted the importance of an ‘about me’ section in its easy to read Learning Disability newsletter. It sets out exactly how patients will be able to share their personal information, and why it’s so beneficial for care professionals to have it. View the newsletter here.
Engaging doctors on their vision for digital tranformation
We’re excited to be working with the Academy of Medical Royal Colleges (AoMRC) and Clever Together, a research and insight agency, to engage the medical profession in a very different way, through an online conversation, about their digital experiences and aspirations.

We aim to engage as many doctors as possible through the conversation, which will kick off next month, by asking about their current experiences and future ambitions for the use of digital technology and information management. Doctors will be invited to log in to an online platform and share their experiences, offer their views and comment on their colleagues’ ideas as well as use voting buttons to indicate support or disagreement with the ideas of others.

This information will be distilled using thematic analysis an a report published in the autumn summarising the views of the medical profession and identifying required actions for government, national bodies in the NHS as well as the medical royal colleges and other medical leadership bodies.

We’re supporting this work to accelerate digital transformation. Through the professional bodies we believe we can gain a deeper understanding of the digital challenges that doctors are currently facing, what works well at present and how they expect to make use of digital technology in their specialties in the future. We are starting the conversation with doctors, but hope to broaden the discussion of digital issues with other professionals across health and care thereafter.
PRSB's Professor Maureen Baker will take the judging chair for Digital Health Awards
We’re delighted to announce that our chair, Professor Maureen Baker, has been confirmed to judge at the Digital Health Awards, as part of our partnership on this year’s Digital Health Summer Schools.
The nominations are open to everyone. You can nominate yourself or someone else and it takes only five minutes to submit your entry.

The winners will be announced at the networking dinner of the annual Digital Health Summer Schools, 18-19 July, University of Leeds and, as part of their prize, they will receive a free place at next year’s Summer Schools 2020. The deadline closes on Friday 7 June.

To enter, simply confirm who you are putting forward, for which category and three reasons why. Entry forms can be found here. For more information visit our full story online.
PRSB ramps up engagement with people who use services
Giving people the opportunity to engage with their own records is an important part of delivering good care. We recognise the importance of involving people who use services and carers in every aspect of our standards development, so that people feel the right information about their own care is available.
In addition to growing our list of user leads for future projects, we’re ramping up our social media activity with people who use services. We’re making our Twitter chats a regular feature and we will be using your comments and queries from each chat to directly inform our projects.

In February we held a successful focus group to look at what people who use services wanted to see in their own records. We have taken their comments on board and we are putting together a plan to incorporate more focus groups in future. We will also be looking into the introduction of user-led webinars and other events.

If you’d like to get involved with future projects as a user lead or you’re interested in finding out more about our work, please get in touch with us.
Webinar: Suppliers share their views on the core information standard
We recognise the importance of working with suppliers as well as care professionals, patients and carers. This month we held a webinar for 30 suppliers, who were able to give their thoughts and opinions on our work on the core information standard.

Vendors thought that the scope for what should form core information for shared care was clear, but that more work needed to done in terms of how the information sharing would be managed. They added that it would be important for professionals to across different areas to work together to deliver integrated care, supported by the standards we propose.
Events round up:

This month our chair Professor Maureen Baker highlighted our vital work on standards at the Urgent and Emergency Care conference. Promoting integration between different services in health and care through the use of standards is a key part of our work, and we’re delighted to have had the opportunity to share these important messages.
Want to know more about our work? Next month we’ll be exhibiting at the Health Plus Care Show at ExCeL London, and taking part in a lively panel session on data exchange.
The full programme has been announced and you can find further details (as well as how to get involved) online here.
BCS and HL7 hosting evening with leading FHIR product developer
BCS and HL7 are to host an evening with leading FHIR product developer BCS Health & Dare and HL7® UK. They are inviting tech enthusiasts to an evening with Grahame Grieve, a FHIR Product Director at HL7 International on Tuesday, 4 June.

Taking place at the BCS in London from 6pm to 8.45 pm, the keynote speech will be followed by a panel session with HL7 chair Dunmail Hodkinson and others. There will be food before the event and drinks afterwards. Entrance is free but advance booking is required. You can get further information and book at the following Eventbrite page.

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