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MSA Coalition Newsletter - February 2021

Message from the Treasurer

I have been the treasurer of the MSA Coalition since I joined the board in 2013, and I am grateful for the financial support we receive from the MSA family. The books are not yet fully closed books for 2020, but at this point it is clear that we will once again exceed $1 million in contributions. So many of you raised funds by having birthday or year-end Facebook fundraisers, holding fundraising events throughout the year (even in the pandemic!), having your own Classy fundraising page, writing a check or donating through the website.
 
Your friends and family may have never heard of MSA before, but they give through your fundraising efforts because you ask, and they care about you. It takes a village, and we are a pretty big one. There are many ways to participate, and whether you support the village with your dollars, by sharing your experiences and advice, or by participating in the conferences or support groups, you are part of the village and part of what make this community work. Thank you for giving from the heart!

With Warm Wishes,
Carol B. Langer, Treasurer
MSA Coalition Board of Directors

Read Carol’s Full Message Here


Register for the Webinar! Join us on February 5 at 3:00 pm ET as we discuss the COVID-19 vaccines with the MSA patient and caregiver community. Learn about the vaccine, timing, associated risks, and special considerations for people with MSA. This session will be recorded and made available on our website after February 5.
 

March is MSA Awareness Month

Mark your calendars for the entire month of March! During Multiple System Atrophy Awareness Month, we'll share many opportunities for you to Shine a Light on MSA. The MSA Coalition will provide daily suggestions on ways to share your story, tell more people about MSA, learn from other people in the MSA community, and have some fun along the way. 

New MSA Awareness Merchandise Available

Here’s a great way to get prepare for Multiple System Atrophy Awareness Month! Order your awareness merchandise from the MSA Coalition now! You can choose from hoodies, face masks, stickers, tote bags, phone cases and more!
 
Find out more and place your order

MSA Gear on Sale!

We’re celebrating the MSA Coalition’s 30 years of service by offering you 30% off MSA Coalition t-shirts, caps, books, and more. Supplies are limited, so order now.
 

Find out more and place your order


Has Your State Officially Proclaimed March as MSA Awareness Month?

Please consider being the MSA Ambassador for your city and/or state leading March Awareness activities. Start by using the link below to learn more and register to let us know you are requesting a proclamation in your area. MSA NJ and the MSA Coalition have partnered in this awareness endeavor since 2013 and are very close to accomplishing the goal of having all 50 states proclaim March as MSA Awareness month! Sample materials and state contact information are available on the MSA New Jersey website.
 
Find out more here.

What’s for Dinner?

The universal question, “What should we eat?” can be harder to answer when you are a caregiver for someone with multiple system atrophy (MSA). How can we have a good and nutritious meal that everyone in the family can enjoy, given the challenges patients have with dysphagia (difficulty swallowing) and caregivers have with time?
 
Read the full article

Find a Local MSA Support Group

MSA can make you feel isolated. We invite you to participate in an MSA support group in your area. Support groups offers patients and their caregivers a forum to interact with others dealing with the same challenging disease. Get practical advice, find support, and know that you are not alone.

Find a support group in your area.

Virtual Support Offered to All: MSA NJ Expands Services to People Outside of the Tri-State Region

Since the onset of the Covid-19 pandemic in March, MSA NJ has moved their monthly support group meetings to a virtual platform and will continue to host these sessions remotely until it is once again safe to resume in-person meetings. People from Arizona, Maryland, California, Nevada, and even Canada have participated recently.
     
If interested in attending these meetings, please visit the MSA NJ Support Group Page  and submit a form with your interest or email contact@msanj.org and someone from the MSA NJ team will be in touch.  
Give now to build hope

Join NORD in Spreading Awareness for Rare Disease Day®, February 28 

Launched by EURORDIS-Rare Diseases Europe in 2008, Rare Disease Day is the patient-led international awareness campaign that brings people together in solidarity with the 300 million patients impacted by rare diseases worldwide. This year, NORD is asking individuals, organizations and companies in the US to help highlight rare disease issues and the need for continued progress in research and drug development. Take action and “show your stripes” to spread awareness on February 28.

Find out more  
 

Shop on Amazon Smile and Earn Money for Our Cause

Did you know the MSA Coalition earned $2000 through Amazon Smile in 2020? Thank you for supporting us this way! When you register with AmazonSmile, AmazonSmile will donate 0.5% of all eligible purchases to the MSA Coalition when you shop. Amazon Smile has a new configuration, so please take a moment to make sure you have The Multiple System Atrophy Coalition Inc selected as your charity of choice. If you use the Amazon Shopping app, a few easy steps to turn on Amazon Smile can be found here.


Give Now to Build Hope
Who We Are; What We Do
Do you ever wish you had a clear statement of what the MSA Coalition is and does?  Your wish is our command – check it out here!
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