Research Webinar: February 15, 9am ET
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Register for the ERN-RND webinar featuring The MSA Coalition's Professor Gregor Wenning. This webinar will have two parts, one on 'MDS criteria for diagnosis of MSA' to be presented by Professor Wenning. The other part entitled 'Introduction and critique of the Gilman criteria' will be presented by Iva Stankovic, a Neurologist at the Institute of Neurology, University of Belgrade, Serbia.
Note: This webinar is open to all audiences but is geared toward medical professionals. Topics covered will be technical. We strongly encourage patients to tell their doctors about the webinar and share the registration link so they are well informed about the latest news. This webinar will be recorded and made available afterward. Look out for distribution of this recording in future newsletters and through our social media channels.
Register Here
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Medical Market Research on Multiple System Atrophy (MSA)
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Clarion Healthcare, a Boston based life sciences consulting firm, is currently conducting 60-minute Zoom interviews with patients and caregivers of patients with MSA. The purpose of this research is to understand the journey and experience of patients and caregivers living with this condition on behalf of a pharmaceutical company interested in developing a treatment for MSA. This research will be taking place between now and mid-February; participants will receive $100 compensation paid by check for their time. The conversation will include:
- The process of seeking and obtaining diagnosis
- The decision-making process and decisions around treatment and management of MSA
- The impact of MSA on patient quality of life
To be considered for this interview, respondents should be patients diagnosed with MSA or caregivers of patients diagnosed with MSA. Respondents must also be able to conduct this interview in English and have access to a computer in order to join a Zoom call.
If you would like to participate in this study, or would like any additional information, please contact Jenny Peterlin at jpeterlin@clarionhealthcare.com.
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New Clinical Trial Opportunity: A Study to Evaluate Mesenchymal Stem Cells to Treat MSA
 Principal Investigator, Dr. Wolfgang Singer, MD states: "The focus is on early disease, and specifically on patients who are still able to walk unaided. We are actively screening for the study, and anyone interested should contact us at adc.research@mayo.edu. We carefully screen and get back to every patient."
IMPORTANT: Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff via the contacts provided at the clinical trials website: https://www.clinicaltrials.gov/ct2/show/NCT05167721 or
https://www.mayo.edu/research/clinical-trials/cls-20523723
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MSA Coalition Selected for NFL’s My Cause, My Cleats Campaign
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 For the second year in a row, Washington Football Team player Jonathon Bostic has selected The MSA Coalition as his cause for the annual NFL national awareness and fundraising campaign "My Cause, My Cleats."
The NFL website explains how "players reveal their passions beyond the game and wear their hearts on their feet through 'My Cause My Cleats.' Players have the opportunity to pick a cause that is important to them and represent their chosen organization on custom designed cleats."
The initiative encourages NFL players to use this event to raise awareness for a myriad of different charities.
Thank you to Jonathan for helping
raise awareness of this rare disease!
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Leave a Review for The MSA Coalition on GreatNonprofits.org
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 Help us earn our 2022 Top-Rated GreatNonprofits badge by sharing your story and experience with The MSA Coalition on our profile.
Your feedback and recognition allows us to continue to serve the MSA community and provide helpful resources to those impacted by MSA.
Share Your Experience
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"Coach Mike 'Papa' Brown MSA Scholarship Fund" to
Donate 10% of 2021 Funds Raised to MSA Coalition
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 In June 2021, a beloved member of our community, Coach Mike "Papa" Brown passed away after a tough battle with MSA. As an English teacher and basketball coach for Albuquerque Public Schools, he made a lasting impression on his students and will be dearly missed by the community.
In his memory, the Brown family is honoring Papa’s legacy with the Coach Mike Papa Brown MSA Scholarship Fund in support of student athletes within the Albuquerque Public School District.
The scholarship fund will also being donating 10% of scholarship funds raised in 2021 to The MSA Coalition!
Thank you to the Brown family for supporting our organization. We will continue to honor Coach Mike "Papa" Brown's legacy through our dedication to ending MSA!
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Join Google and LSVT in Project Euphonia
Google has launched Project Euphonia in partnership with LSVT with the goal of making speech recognition more accessible to people with speech disorders. To do this, they need samples of disordered speech to train their system. LSVT Global is recruiting people with speech disorders to help. Upon completion of the project, participants will receive a $60 gift card from Google.
They are looking for participants with Parkinson’s disease (PD), PSP, MSA, CBD, post DBS or Tremor with mild, moderate, or severe speech disorders.
How Can You Help?
You record samples of your speech online in the comfort of your home, with the assistance of an expert speech clinician.
For questions, contact project.euphonia@lsvtglobal.com.
Register Here
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Who We Are; What We Do
Do you ever wish you had a clear statement of what the MSA Coalition is and does? Your wish is our command – check it out here!
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For assistance and a listening ear,
call: 866-737-5999
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Give to The MSA Coalition with your Amazon purchases through the Amazon Smile program.
Learn More
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Prof. Gregor K. Wenning has served on The MSA Coalition’s Scientific Advisory Board from 2013 to 2021, culminating his service with a two-year term as Chairman, and was recently elected to The MSA Coalition Board of Directors.
Adrienne Glusman is a professional speaker, ambassador and advocate on the topic of Millennial Caregiving and just joined The MSA Coalition Board of Directors in 2022. Adrienne’s speaking engagements focus on sharing her story and journey as an only-child caregiver to her mom, Hetty, who passed away in 2020 after living with Multiple System Atrophy since 2010. Adrienne’s story as Hetty’s caregiver was featured in a Wall Street Journal article, ‘The Call To Care for Aging Parents Comes Sooner Now.’ Her story has also been featured in Health magazine, Toronto Sun and Vox.com to name a few. In addition to keynoting national conferences for Leading Age, National Church Residences and The Multiple System Atrophy Coalition, Adrienne has also been involved with various caregiving campaigns including serving as a caregiver ambassador for EMD Serono’s Embracing Carers, Leading Age’s ‘Carry the Convo’ and The Scan Foundation’s ‘Do You Give a Care’. You can follow her on Instagram and Facebook @younglifeinterrupted, or subscribe to her podcast, Young Life Interrupted, where she is lending a voice to her journey so other young caregivers can feel seen, heard and supported. 
