Alterity Therapeutics Announces Clinical Trial in the UK
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Alterity Therapeutics announced that the United Kingdom Medicines & Healthcare products Regulatory Agency (MHRA) has accepted Alterity’s clinical trial authorization request to conduct its Phase 2 clinical trial for ATH434 in Multiple System Atrophy (MSA), a rare and highly debilitating Parkinsonian disorder.
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New UF Study Seeking MSA-P Patients to Participate
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It was announced last month that researchers from the University of Florida will begin testing a new artificial intelligence tool that can help distinguish a precise diagnosis between Parkinson's Disease, Multiple System Atrophy Parkinsonian variant (MSA-P), or Progressive Supranuclear Palsy (PSP).
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UF is looking for individuals who have Parkinson’s Disease (PD), Multiple System Atrophy Parkinsonian Type (MSAp), or Progressive Supranuclear Palsy (PSP) to participate in two testing sessions with over 20 testing locations across the U.S. and Canada.
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"From Bench to Bedside: The Promise and Hope of MSA Research" Webinar Recording Now Available!
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 Last month, we launched the first webinar in our "Bench to Bedside" series which will highlight researchers who applied for and won a grant from the Coalition’s seed grant program.
This first webinar focused on pre-clinical research. Two grants funding research into the link between insulin resistance and MSA were initially awarded in 2015 and 2016. Dr. Erwan Bezard and Dr. Wassilios Meissner share their research and its results and answer questions during this recorded webinar.
Watch Webinar Recording
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Welcome Elizabeth Turcza, MSA Coalition's New Director of Fundraising and Sponsorships
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 The MSA Coalition is excited to have Elizabeth Turcza join its staff as the Director of Fundraising and Sponsorships! In this role, Elizabeth will oversee the Coalition's fundraising efforts, donor relations, and corporate sponsorship outreach that will help fund MSA research and support our community members.
Elizabeth comes to us from the Chicago Council on Global Affairs where she managed a portfolio of 300 donors and prospects, oversaw a 3,000 person membership base, and developed donor programs and communications as their Assistant Director of Individual Giving.
“I am grateful for the opportunity to contribute to The MSA Coalition’s mission of improving quality of life and building hope for people living with MSA. I look forward to working with and for the dedicated members of the MSA community and bringing a compassionate and focused approach in championing the Coalition’s work.”
Welcome to the team, Elizabeth!
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 Miles for MSA is a fundraiser that was started by The Urban Family in 2020 in an effort to raise money for The MSA Coalition, bring awareness to MSA, and bring people together for a fun, challenging, month-long event.
This year, participants will either run 100 miles or bike 300 miles between April 20th and May 21st. Event founder Austin Urban will be doing both!
The 2022 Miles for MSA Team has over 30 members running and biking all over the country and has a team fundraising goal of $100,000.
Make a Donation! Help the Miles for MSA fundraising team reach their goal of $100,000. You can make your contribution online here.
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Clinical Trials Day is May 20th!
Join ACRP in celebrating Clinical Trials Day, a well-deserved ‘time out’ to recognize the people who conduct clinical trials and to say “thanks” for what they do every day to improve public health.
This day of celebration also provides our community with a unique opportunity to raise awareness of clinical trials – and of clinical research as a career option – among the greater public.
Help raise awareness of clinical research and the profession by sharing photos of yourself with downloadable selfie signs, posters, and more!
Tag ACRP and use #CTD2022 and #clinicaltrialsday in your posts.
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Who We Are; What We Do
Do you ever wish you had a clear statement of what the MSA Coalition is and does? Your wish is our command – check it out here!
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For assistance and a listening ear,
call: 866-737-5999
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Give to The MSA Coalition with your Amazon purchases through the Amazon Smile program.
Learn More
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In the next couple weeks, we will be sending out a needs assessment survey to our community members. The purpose of this survey is to gather information about the needs of the Multiple System Atrophy (MSA) community in order to inform the development of programs, services, and resources.
The MDS Taskforce was chaired by Dr. Gregor Wenning, 
Last month, Lisa Hale MSSW joined The MSA Coalition as an official consultant! Her expertise in social work, family services, and neurodevelopmental disability make her an invaluable resource to our MSA community.
