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MSA Coalition Newsletter - November 2021

Couldn't Make it to the Conference? Watch the Recordings!

The recordings of this year's Annual Patient & Family Conference sessions are now available on our MSA Coalition YouTube Channel! These are recordings of live presentations, expert panels, and Q&A sessions that are all wonderful resources for anyone affected by MSA.

We've broken out our conference content into several YouTube playlists separated by topic so you can easily find the resources you're interested in. Find links to each playlist below:

  1. About the MSA Coalition
  2. Research Panels & Presentations
  3. Medical Panels & Presentations
  4. Living with MSA
  5. Community Partner Presentations
You can also find more content from past conferences here.
Patient Perspective:
Recognizing Your Potential Risk of Falls
MSA Coalition patient representative, Cathy Chapman explains how MSA can increase your risk of falling. In her blog, she shares common factors that increase fall risk as well as tips on fall prevention and safety.

Read More
Care Partner Corner:
Providing Emotional Support to a Loved One with MSA
Ashley Perera shares the experience of being a fulltime care partner to Nilu who was diagnosed with MSA and opens up about the challenges while providing hope and advice to other MSA care partners.

Read More

Treatment Updates in MSA Pipeline

Several pharmaceutical companies and research institutes have shared updates for potential MSA treatments in the last month:

  • Alterity Therapeutics Announces Expanded ATH434 Phase 2 Clinical Development Program
  • Teva and MODAG Announce Licensing Collaboration for Neurodegenerative Disease Drug Candidate
Read more on our MSA Treatment Pipeline webpage.

End-of-Year Fundraising

Our year-end fundraising campaign is the single most important source of funding to enable us to carry out our mission each year and positively impact those who are affected by MSA.

Keep an eye out for messages about how we’re Giving Thanks and Giving Hope as we end the year.

Read more about Ways to Give to the MSA Community.
 
Help us build hope for MSA families!
Donate Here

Cares Act Tax Contributions to Non-profits

The Cares Act, as extended into 2021, allows taxpayers who do not itemize to deduct up to $300 per person (a total of $600 per married couple) of cash contributions to qualified non-profits like The MSA Coalition. Contributions must be made in cash or by check; stock or DAF contributions are not eligible. This provision will expire at the end of 2021, unless it is extended by congress.

For those who do itemize, The Cares Act increases the limit on deductions of qualified contributions from 60% of adjusted gross income (AGI) to 100% of AGI through 2021. Taxpayers should consult their tax advisors for additional information.

Do Your Holiday Shopping with The MSA Coalition

With the giving season just around the corner, consider purchasing gifts from our online store. Proceeds from these purchases go toward MSA research efforts and patient and family support.

Shop Now

You can also give to The MSA Coalition with your Amazon purchases through the Amazon Smile program.

Learn More

MSA Coalition Sponsors AAS Conference 2021

The MSA Coalition is proud to be a silver sponsor at the 2021 American Autonomic Society Virtual Conference. On November 4-6, 2021, the AAS will bring together a diverse group of clinicians and researchers who are interested in the autonomic nervous system including Dr. Daniel Claassen, member of the MSA Coalition Board of Directors, who will be presenting on “New Observations in MSA Imaging."

Learn More


CurePSP Virtual Fall Family Conference

On November 12, 2021, CurePSP will be hosting their virtual family conference from 11:00am - 3:30pm ET. The purpose of these conferences is to educate and provide valuable resources for those who are living with neurodegenerative diseases such as PSP, CBD, and MSA. General Admission tickets are $20 each.

Learn More
 
Who We Are; What We Do
Do you ever wish you had a clear statement of what the MSA Coalition is and does?  Your wish is our command – check it out here!
Call us for assistance and a listening ear: 866-737-5999
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