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2021 Year in Review

  • Welcomed two new staff members

  • Presented Effective Communication workshops with Rachel Callander

  • Published the stories of several families with Usher syndrome

  • Hosted Melbourne Uni Masters of Genetic Counselling student Placements

  • Presented a webinar on the latest Australian research into Usher syndrome

  • Emily was awarded the Rotary Sir John Reid Community Service Award

  • Continued our research collaboration with Melbourne Uni

  • Ran regular family catch ups with parents of children with Usher type II

  • The Davis Family organised the Jett's Journey fundraiser for UsherKids

  • Created education videos on hearing appointments

  • Published an article on Usher syndrome in Insight News

  • Published an article on new clinical trial with CERA and the Alderman Family

We are pleased to share our 2020/2021 Annual Report with our Usher community. 

Last chance to register!!

We will be hosting our next virtual parent/carer meet and greet session on Friday 17th December at 10:00am (ADST). The session is open to parents and carers of children with Usher syndrome and provides an opportunity to share knowledge and facilitate connections across our rare community.

The event will be held online via Zoom and registration is required. 


We are excited to announce that UsherKids Australia are the chosen charity of this year's Bendigo Rotary Carols by Candlelight. The night will be held in Rosalind Park, Bendigo VIC on Sunday, 19th December with a gold coin donation at the gate to go toward supporting our Usher families. 
The festivities begin from 6.30pm with lots of family fun and entertainment. Enjoy carols, performances and a visit from the big man himself, Santa at 9.30pm.

Join us for what will be a wonderful night!

Registrations are now open! 


We are pleased to release our fantastic program that continues our learnings from the 2020 USHER IN FOCUS Webinars.  UsherKids Australia will bring together families and a diverse range of healthcare professionals who work with children with Usher syndrome on March 25th, 2022 to exchange information and share different perspectives on some of the most important transition periods facing our children today. The program will also include an opportunity for parents to build relationships with others, as well as start an important exchange of evidence-based practices for caring and supporting children with Usher syndrome in various settings. And as always, we will hear from those with lived experience of Usher syndrome about what aspects of transitions worked well and not so well to arm families with various strategies to improve outcomes.

Download Conference Flyer Here:


Esplanade Hotel Fremantle by Ridges, Western Australia.

The Conference theme "Deafblind keeping connected through COVID and beyond" aims to support the reconnection of people with deafblindness and those that support them across Australia.  The National Deafblind Conference is the only forum in Australia with capacity to educate, connect, and support across sectors including deafblind individuals, families, service providers, educators, allied health and community organisations. 

UsherKids Australia will also be supporting the Usher syndrome Pre-Conference on 29 June 2022 - 9am - 3pm, a day dedicated specifically to the needs of those living with Usher syndrome. 

Both the National DeafBlind Conference and the Usher Pre-Conference will be live streamed for those unable to attend in person.

For more information please visit

We are pleased to invite our Usher community to join the 11th National Deafblind Conference, 2022 in Perth 30 June -1 July 2022 at the

UsherKids Australia is a Registered Charity

All donations over $2 are tax deductible. 
To donate, please click here.

Copyright © 2021 UsherKids Australia, All rights reserved.

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