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Dear <<First Name>>

Welcome to our November newsletter including updates on our work and an action you can take to urge the government to protect the livelihoods of disabled people.

How can we build on the COVID-19 ‘remote access revolution’?

The CIIP has produced two new guides to remote access aimed at employers, universities, the public sector and researchers. This is part of a drive to ensure the COVID-19 ‘remote access revolution’ isn’t lost when the pandemic ends.
Funded by the London-based HEAR Network, the two guides can be shared freely with employers, universities and other organisations who might need some help to become more inclusive of people with energy limiting chronic illness.
The first guide - ‘Turning the remote access revolution into reasonable adjustments  - pushes employers, universities and the public sector to make the use of videoconferencing technology the norm when planning meetings. The CIIP crowdsourced the suggestions from its followers to produce the guidance on facilitating successful ‘hybrid’ meetings, in which some people attend online and others in person. The guide also lays out how this form of meeting is a legal requirement under the Equality Act 2010.
The second guide - ‘Remote Researchers: Learning from experts-by-experience in digital inclusion’ - is aimed at other researchers who wish to make their research more inclusive. It sets out the unique research practice developed by the CIIP to reach people who cannot participate in traditional face-to-face focus groups, such as those who are housebound.
Catherine Hale, director of the Chronic Illness Inclusion Project, said:
“An unexpected outcome of COVID-19 has been the ‘remote access revolution’, in which remote working and online meetings have suddenly become the norm. While this has increased accessibility for people with ELCI in areas such as work, higher education, politics and civic life, many of us are concerned that the option may not continue beyond the pandemic. This would be particularly unacceptable since this form of access is a legal requirement - considered a ‘reasonable adjustment’ under the Equality Act 2010 - although it is one disabled people have long been denied.

Bring ESA in line with other benefits

Write to your MP

It’s been 6 months since Chancellor Rishi Sunak increased Universal Credit by £20 a week but failed to give the same increase to those on legacy benefits, including Employment and Support Allowance, Income Support and Jobseeker’s Allowance.

In November, the Government will decide the new rates for benefits for the next financial year. Now is our opportunity to make sure Chancellor Rishi Sunak MP doesn’t let over two million people go without the £20 per week increase for another year. Z2K has a template letter you can adapt to write to your MP:

Increase Legacy Benefits - Ask your MP to back the call

Other News

Collaboration between CIIP and Leeds University
“The emergence of Long Covid and its impact on employment and livelihoods means that policymakers must now take ELCI and energy impairment seriously as a form of disability or impairment. Our research on the lived experience of ELCI reveals just how badly this group of disabled people is served by current policy. We aim to provoke a complete rethink of the principles behind disability assessment systems like the WCA, and offer new recommendations on how to include more people with ELCI in society, as well as employment.”  Read more

NICE finally overturns damaging Graded Exercise Therapy for ME/CFS
This is the result of years of hard-fought, patient-led campaigning against the might of the medical establishment. But what are the implications for disabled people with other poorly understood or hard-to-diagnose diseases?
Read more

Thank you for your donations!

We are enormously grateful for each and every donation we've received and we apologise for not yet having the technology and the capacity in place to thank each donor individually. Your support gives us so much encouragement.

The Chronic Illness Inclusion Project receives no core funding and we are very grateful for any donations to help cover our running costs.
With best wishes,

Aly Fixter, Communications and editorial volunteer,


Catherine Hale, Director of CIIP

Copyright © 2020 Chronic Illness Inclusion Project, All rights reserved.

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