Professional Record Standards Body - August/September 2019

You're invited! Putting patients first at this year's AGM
We’d like to invite you to join an exciting morning of patient-focused discussions on 18th September, where we will update our members on our latest news and updates.

Held at the Royal College of Nursing in London from 9.30am, to 12pm, the event will include a keynote speech from the new CEO of National Voices, Dr Charlotte Augst, talks from our CEO Lorraine Foley and chair Professor Maureen Baker, as well as an update on implementation progress with Dr Nicola Byrne, CCIO at South London and Maudsley NHS Foundation Trust.

We’ll finish off the morning with a patient and carer panel session, where we’ll discuss the importance of personalising information to a person’s individual needs.
We’d love to see you at our event, so if you’d like to come, please register online here. If you have any questions or you’d like further information, contact
Latest: A step closer to fully digitised GP services
In order to provide a fully digitised GP service, Lloyd George records in general practice should be scanned and stored digitally. Although these patient records are no longer updated, they are needed to understand patients’ medical histories and may be shared with patients if they request to view them. Digitising Lloyd George records forms part of a national programme in primary care to take advantage of the potential of digitisation to improve care, increase patient safety and support primary care teams.

The North of England Commissioning Support Unit (NECS) was tasked by NHS England to identify options for digitising historic Lloyd George records. NECS identified four options and recommends a full digitisation of Lloyd George records with a complete upload to general practice clinical systems. PRSB will be carrying out a national consultation to ask relevant professionals, patients and the public their views about the options and NECS’ recommended processes.

PRSB will launch the survey in September, working with patient and professional groups to ensure we have input from a wide range of people with an interest in digitising GP records. We will feed back our findings and the recommendations that emerge from the consultation to NHS England to inform policy.
Help shape guidance about information sharing in health and care

Many organisations have published guidance on information governance which sets rules about how health and care information should be shared on a 'need to know' basis.

NHSX wants to bring all this guidance together in one place, to simplify it, and to ensure that any new guidance focuses on the topics that are most important to you. They want to hear what guidance you want to see and how you would like it presented.

NHSX would value your time in completing this short questionnaire to help make the guidance useful and accessible to all.

GPs need more support to help their patients receive the right end of life care
It’s important for people who are receiving end of life care to make decisions based on what matters to them.  A new report from Compassion in Dying has investigated what GPs need to know about these advance decisions and Do Not Resuscitate (DNR) forms to personalise care for every individual.

Through interviews with GPs, five key themes emerged, which demonstrated some of the barriers that people face in getting the personalised care they need. Firstly, GPs need more information about advance decision making, and the legalities involved in the process. In some cases GPs felt discussing advance decisions should be part of private work, while others felt that direct conversations about dying could be difficult for the patient. Other concerns included the practicality of covering these sensitive issues in a 10 minute GP appointment slot, and potential repercussions if families later disagreed with decisions.

The research clearly shows that we need stronger communication around this issue to ensure that people get the palliative care they deserve.

Standards for information sharing can help to support the delivery of good, safe care. By ensuring that correct and up to date information about a person’s decisions can be shared directly between systems, it will make GPs and other care professionals more confident in the care they are offering. It also means that any changes in decisions can be recorded and shared between all professionals involved in a person’s care, in a timely and efficient way.

End of life care can be a distressing time for both the person accessing care and their families. But proper information sharing can support a future of more personalised, compassionate care.

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We’d like to invite you to share this newsletter with stakeholders and colleagues. If you have been forwarded this newsletter and would like to receive our updates on a regular basis, please contact or subscribe here

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