PRSB News - December edition 2019

It's been a busy year! : CEO Lorraine Foley looks back on 2019
It’s been a busy 2019 for the PRSB. In the first half of the year it was all hands on deck to produce the core information standard for shared care records. Our workshops, targeted webinars and survey attracted more than 1000 responses from health and care professionals and patients - making it one of our largest ever consultations.
This helped us to publish the standard successfully, ensuring that basic information about a person and their care can be shared between a wide range of different services.
Last year research estimated that there are more than 200 million medication errors every year. In May we published our digital medication information assurance guidance which sets out how to communicate medication dose and timings digitally between systems in all care settings without any change or loss of accuracy or meaning. This will not only help to reduce errors, it’s also likely to lead to a reduction in medication waste.
In addition to developing new standards and guidance, encouraging implementation has remained a key focus for the PRSB. In Leeds, our pharmacy information standard, which was also completed this year, is already being trialled. Data on flu vaccines is now being shared digitally with GPs from local pharmacists. Meanwhile trusts across the UK are moving beyond the initial trial phases to put transfer of care standards into action.
We’ve put huge efforts into our citizen engagement this year, attracting an increased number of patients and carers to get involved with and co-lead our projects. In addition to regular social media chats, we’ve launched targeted patient focus groups for our projects and some 400 patients got involved in one or more of our projects. Our ambition for 2020 is to see this grow even further, as we continue to put patient voices at the heart of our work.
What's next?: PRSB Chair, Maureen Baker
As we move into 2020, we’re going to see a greater focus on the relationship between health and social care, and we’ll be working closely with different regions across the country to develop better tools for sharing information between services.
Previous research by the PRSB has highlighted gaps in information across the care sector. For example the care home survey in 2017 showed that 73% of homes do not receive proper discharge summaries from hospitals.

We plan to work closely with different health and social care providers to further develop standards for social care to bridge this gap and improve information flows. This is also likely to help support shared decision making, which is a key part of the government’s plans to support people in getting involved in their own care.
As part of the drive to empower people, the importance of listening to the patient voice is becoming increasingly recognised. The use of app technology, online consultations, as well as scientific breakthroughs in artificial intelligence and genomic testing are likely to increase in 2020, as we see a rise in the number of people getting actively involved in their own care.

This year we started a new project to determine what and how genetic information should be shared with patients and clinicians when it impacts medications. The guidance from this project will be published early next year. Pharmacogenomics, the way genetics impacts medications, is a rapidly developing area of clinical care. In addition to working with clinicians, educators and colleges to develop the way information is shared, there will also be recommendations about education and training for the workforce as this information starts being used in practice.

Meanwhile we’ll be engaging with patients in discussions on app use in health and care, to determine how they use digital technologies to manage their health and care and what they look for in a tool. We’ve got much to look forward to next year, and we hope, by the end of the next decade, we will have built a truly integrated health and care system.   
Social care at the forefront for 2020
PRSB is putting social care at the forefront of its work next year, kicking off with several new projects in 2020. We will be working closely with different regions across the country to improve information sharing between care providers to support better communication between health services and care homes or providers in people’s homes, and shared decision making. For health and care to become more innovative it’s vital that we join up services.
One way we can do this is by digitising the ‘red bag’, which contains personal belongings and information about a patient’s social and care needs when they are transferred between hospitals and care homes.
By standardising the information that needs to be shared, we can ensure that hospitals and care homes or care providers at home have the right information about a person to provide the best care. Our work with social care in the different regions will be expanded nationally after successful trials.
Matthew's story
In 2018, the PRSB went to Hull to visit Matthew Prosser and his family. Born with cerebral palsy and epilepsy, Matthew was being cared for by his parents, Tony and Tricia, and a team of different specialists.
The video raised awareness about the challenges his family were facing in getting information shared safely and securely with everyone involved in his care. Matthew sadly passed away in November this year, but his family has requested that the video continued to be shared as part of his legacy. It highlights how vital good information sharing was for Matthew and for other people who live with long-term conditions and are unable to communicate their own needs. You can find the updated video here.
Digital Health rewired : Official partner for 2020
The PRSB will be an official partner of Digital Health Rewired, the show that connects current and future health leaders with the best in disruptive digital health, which returns to London Olympia, 3-4 March 2020.

Rewired 2020 will place innovation and digital transformation centre stage, and add a dedicated new CCIO/CIO track, as we bring together the most exciting digital health start-ups with NHS IT leaders and their teams. Also new for 2020 is the Rewired Data Lab and Digital Health Developer Conference.
Jacqueline de Rojas CBE, president of techUK and Matthew Gould CEO NHSX will headline the Rewired Leadership Summit (day one) and Exhibition and Conference (day two) respectively.  Other essential speakers include Sarah Wilkinson, CEO NHS Digital, Tara Donnelly, chief digital officer (CDO) NHSX and data campaigner Dr Ben Goldacre, plus a line-up of leading NHS CEOs, CCIOs and CIOs, and founders of many of the most exciting digital health start-ups from across Europe.
PRSB members who register now for Rewired also have the chance to win a free place at the prestigious Digital Health Summer Schools 2020. To qualify for the prize draw, register here for Rewired 2020 by 31 January 2020 and then enter the discount code ‘Aff_PRSB’.
The Faculty of Clinical Informatics is seeking your feedback on Phase 1 of its Core Competencies project, which aims to get consensus on definitions for clinical informatics and establish the key skills and knowledge required for a role in clinical informatics.
As part of this work the organisation has created two reports, which it wants your feedback on. The consultation on the first phase will run until 20 January 2020. You can find further details and download all materials on the faculty website.

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