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05/26/2023 - Name Correction - Kathryn Nicholson first person to receive Lamzede in the US
05/23/2023 - Kathryn Lawless first person to receive Lamzede in the US
05/22/2023 - Reminder: NORD: Latino/a/x Rare Community
04/20/2023 - WANTED: COMMUNICATIONS OFFICER FOR ISMRD
04/03/2023 - NORD: Latino/a/x Rare Community
03/16/2023 - President’s Report on WORLDSymposium 2023
12/27/2022 - President's End-of-Year Letter
12/08/2022 - CouponBirds Seedling Project
12/04/2022 - Aiobhe Foundation Donation
10/28/2022 - Fucosidosis PGT-M Testing
10/04/2022 - Vale Dr Beck
09/20/2022 - ISMRD Seeks Treasurer
09/13/2022 - ISMRD 2021 DONORS
08/11/2022 - In Memory of Stacy Buchanan
07/03/2022 - JCR Pharmaceuticals' Questionnaire
06/04/2022 - ISMRD Seeks Volunteer Accountant
12/19/2021 - The Rare Fair
12/10/2021 - JCR Pharmaceuticals New Treatment Award
11/10/2021 - NORD Announces 31 Rare Disease Centers of Excellence
10/03/2021 - Exciting News for ISMRD